Tuesday, April 25, 2006

Update

Yes, I know, I know. It's benn awhile. Wanted to let everyone know bedwetting is over. Knock on wood. Thanks everyone for yor suggestions. Am now back in fundraising mode for 2006 Tour de Cure. Also have been itching to be more of an advocate for people with diabetes. S.1955 really scares the hell out of me! I don't think we are in any position now to take steps backward. If we have to start focusing our energies in the same places we did 20 years ago I feel that we will never see ourselves moving toward a cure. If you haven't taken action on this legislation please contact your Senators ASAP. The bill will be voted on this week and there appears to be strong support in the Senate. For information on S.1955 go to advocacy.diabetes.org. In short, this bill will allow insurance providers to charge companies more for insurance if they employee diabetics and people with other serious diseases and allow these providers the option of covering diabetic supplies. Currently 46 states protect these rights. Act Now! Don't forget the revolution!

Saturday, December 17, 2005

Start the Revolution!

True to my word I am back for another week. This week I had the pleasure of meeting a parent of two of my students whose daughter was recently diagnosed and started on an Animas pump. Same endo, same cde, same pump. In the spirit of the gift of information I was given last week I paid it forward and offered this woman freedom of phone calls and emails to answer any questions. And all of us parents know that there will be questions.

The revolution starts now. It is time for a drastic change in the way diabetes is viewed in this country. It is time to step up and prepare the people who are living the the dLife. As I have said and written before, I believe that we all have an opportunity to make a difference: by spreading the info. we have, by searching for a cure, by supporting education of diabetics and parents, and for screaming our heads off when the governement tries to legislate away ours and our children's best interests. Again, we can focus on ourselves and our children or we can do that and go out and make a difference. The best way to do this in my estimation is to network with the people who are on our team. To create a revolution of understanding and support; of fighting and gritting our teeth but mainly a revolution of information. The Revolution Starts Now. Pay It Forward.

Saturday, December 10, 2005

Okay, Now I'm Back

Maybe I wasn't really back the last time but I'll try harder. Diabetes strikes again and this time in the form of bedwetting. AAAAAAAAAAAAAAAA. The pediatrician told us it might be psychological. The new CDE didn't have any course of action. My wife is tired of washing sheets and I need a good nights sleep. This leads to why I am back to posting. My blog buddy and fellow Type1 parent Sandra at A Shot in the Dark was able to offer some insight. Which brought to mind why I started this event anyway. Support, understanding, exchange of info., etc. I just wanted to make a public thank you and a promise to all the bloggers to do my part. As always be well.

Sunday, November 06, 2005

I'm Back

I realize its been awhile but I've been super busy. The pump has been interesting. It's like a grand puzzle. What caused this what caused that, can we change the basal? the ICR? Wow!!! We were stable for a whole week and then the time change. Silly adult caregivers that we are we forgot to change the time. Erattic of course! Does the Fed know what difference an hour makes to the pumpers? Add that to the list of reasons to get rid of the madness that is DST.

Halloween! Fuhgettaboutit! Start by tossing everything that can't be counted into the Boscov's bag. (They trade candy for gift certificates). Continue by saying "NO" at least 40,000 times and limiting the menu for the Autumn Festival Party at School -- why don't they just call it the Get Hopped Up On Sugar And Send'em Home Massacre? (That makes you feel good as a parent). Follow up by having high bgs anyway because of late nights and excitement. Then finish it off with a nice visit to your friendly dietitian who offers that you need to eat more vegetables and less fat. Great holiday this is. Cant wait until HighCarb Thursday at the end of this month and Sock Your Sock Full of Sugar Day the following month.

Until Next Time! Season's Greeting -- No, I really mean it! I love this time of year! Did I mention that The season that is "Hot Chocolate" is just down the road.

As Always, Be Well!!

Thursday, August 04, 2005

The Pump

Over the last several weeks I have learned that i know very little if anything about diabetes. The knowledge gained through pump classes has been tremendous. The work is tremendous. The stress is tremendous. Olivia started on saline on 8/1. Insulin starts Monday. Changing the set has taken us back to when Olivia was first diagnosed: screaming and crying, running away when she knows its time to change, etc. Otherwise I think she thinks its kind of cool. She struts around with it hanging on her shorts and swim suit. Even the tiny Animas seems huge on her little body. Questions: Anybody have any great ways to hold the pump during sports? What about swimming? I am appalled at the cost of these accessories. I'm thinking of a little side business. How can they charge 29.99 for a neoprene Sport Pak for a pump and 12.50 for the same item only it is used for an mp3 player? My mother sewed some simple carriers with belt loops out of scrap materials. One dollar maybe.

Thursday, July 14, 2005

The Real Team


This is the picture I meant to post yesterday. The picture you saw is of my injuries following the ride. Pretty, huh!?!?

Wednesday, July 13, 2005

Team Olivia Update and Misc.





It's been awhile and much is happening in our little diabetic corner of the world. First, we received word today that TeamOlivia was the highest fundrasing team in the local Tour de Cure. Just shy of 15000 dollars. Way to go teamand all of our supporters!!!

Also, last week Olivia's pump arrived via UPS. Everyone here is filled with excitement and anxiety. We went with the Animas 1250 because of the small increments and the small size. It's tiny. Thank God I don't have to pay for this thing. Beaucoup dollars. Olivia seems ready to get hooked up. She starts on saline August 1 and on insulin August 8. We still have much to learn. We have been meeting with the dietician regularly to improve our advanced carb counting skills and will meet with DE three times before P-Day. I think it will be worth it. I don't think I'll miss all those syringes and I'm sure Olivia won't.